Sickle Cell Awareness Thread: Sickle Cell Awareness Month 2023! UPDATE: FDA APPROVES GENE THERAPY
- Thread starter playahaitian
- Start date
Thanks for all the links and information.
@playahaitian
Went for my first blood donation this afternoon. Signed up in Sept' and one of the local schools was doing it today. Very smooth process. Staff were all great - polite. Mentioned to you previously that when my mom had broken her hip two years ago, she developed a blood clot in her lungs & required a 2-pint transfusion. Said she felt terrible in hospital while pre- & post-surgery and fortunately has made a full recovery with the hip replacement. Have seen her a handful of times in recent years. Even got in some long walks & a bike ride with her (her decision with both). She has been donating blood for years, and her boyfriend's been a regular donor as well (for 40+ years). They're both in their early-70s. When I was talking to her this year prior to her birthday, she said a great gesture us kids could do for her would be to sign up to become blood donors ourselves.
Glad I did ... and will be donating a few times annually moving forward.
Recommend doing so for anyone who is willing & able to do so safely.
Fam...
This is going to be a very difficult winter.
Be super safe
A lot of upper respiratory infections going around. ER flooded with RSV, cold, flu, cough, asthma etc....
Covid still active
Stay WARM, Stay HYDRATED and take your medication
Mask up.
I ain't just talking...
I'm going through it now myself.
Prayers go out to you all.
This is going to be a very difficult winter.
Be super safe
A lot of upper respiratory infections going around. ER flooded with RSV, cold, flu, cough, asthma etc....
Covid still active
Stay WARM, Stay HYDRATED and take your medication
Mask up.
I ain't just talking...
I'm going through it now myself.
Prayers go out to you all.
Children's hospitals grapple with a nationwide surge in RSV infections
The latest spike is months early and it's pushing care facilities to capacity. Children under the age of 5 are most vulnerable.
www.npr.org
To my bgol family...
This pandemic is ongoing.
If you have not personally been effected
God bless
But to the immunocompromised?
It's still real.
I don't want to say it's your responsibility as a people
As citizens
As human beings
As a black community
As a parent
Even though ALL THAT IS TRUE
but we live in a society that is so sensitive about the wrong things. Are offended and passionate about the wrong things.
It's difficult to have conversations about humanity and dignity and responsibility without someone of some group deliberately being difficult.
So I say to my right thinking and feeling brothers and sisters
Personally do the best you can.
Help those who need it.
Cause the baby and I caught covid while she was already seriously ill in the hospital.
It was a scary life altering experience I would not wish on my worst enemy.
But my real bgol family held me down and lifted me up
I will NEVER EVER forget that.
I see it every time my baby takes a breath every smile...
Please try your best and on bgol we truly have some of the best
I got PROOF.
try your best to help those in need and especially in the sickle cell community
They need and appreciate it.
This pandemic is ongoing.
If you have not personally been effected
God bless
But to the immunocompromised?
It's still real.
I don't want to say it's your responsibility as a people
As citizens
As human beings
As a black community
As a parent
Even though ALL THAT IS TRUE
but we live in a society that is so sensitive about the wrong things. Are offended and passionate about the wrong things.
It's difficult to have conversations about humanity and dignity and responsibility without someone of some group deliberately being difficult.
So I say to my right thinking and feeling brothers and sisters
Personally do the best you can.
Help those who need it.
Cause the baby and I caught covid while she was already seriously ill in the hospital.
It was a scary life altering experience I would not wish on my worst enemy.
But my real bgol family held me down and lifted me up
I will NEVER EVER forget that.
I see it every time my baby takes a breath every smile...
Please try your best and on bgol we truly have some of the best
I got PROOF.
try your best to help those in need and especially in the sickle cell community
They need and appreciate it.
I highlighted the portion above, because it took someone, I knew personally to die from complications of sickle cell to do additional research. I wish you nothing but the best for you and yours my brother. Keep up the good fight.
I appreciate that truly
It has been a hellish time to be honest
But we making it through.
I really hope my story inspires folk to help out those who need it the most.
I hope our black athletes see this
you don't HAVE to be on Lamar level..
so many kids would GLOW for this opportunity
Please try your best to make a kids dream come true during a very difficult time
NFL.com | Official Site of the National Football League
The official source for NFL news, video highlights, fantasy football, game-day coverage, schedules, stats, scores and more.
Sickle Cell Speaks - Sickle Cell Speaks
There are many misconceptions about Sickle Cell. Like it’s contagious. Like people with Sickle Cell are drug addicts. Like the only effect is pain. Because of these widespread beliefs, people with this genetic disorder may feel misunderstood, even isolated. Eliminating the stigmas surrounding...
sicklecellspeaks.com
They can't be serious...
Mission to eliminate sickle cell anaemia By 2047: Finance Minister
Mission to eliminate sickle cell anaemia By 2047: Finance Minister
The government also announced to establish 157 new nursing colleges will be in co-location with the existing 157 medical colleges established since 2014.
They can't be serious...
Mission to eliminate sickle cell anaemia By 2047: Finance Minister
Mission to eliminate sickle cell anaemia By 2047: Finance Minister
The government also announced to establish 157 new nursing colleges will be in co-location with the existing 157 medical colleges established since 2014.economictimes.com
I don't think they are...
I mean if it happens I ain't complaining
Hope so as well.... past 10 years alone there has been a lot more treatment options out there.
There are a lot more informed med personnel out there and from a financial standpoint it costs more for ER to help with sickle cell crisis patients as opposed to finding a permanent treatment.
Last figure I heard something like the 1.7 million worth of treatment over the lifespan of a sickle cell patient
I'm saying 20+ years from now?
There's solutions like stem cells out there. Don't know what else as far as technology today, but 20 years just ain't helpful to anyone "today".
Bro I just got hit with an 1800 bill outta no where
Yup I am fortunate to have great insurance for my little ones but I do have relatives who are not as fortunate.
Canada healthcare has been a god send for my cousins with Sickle Cell......
Once the Human Genome project sequenced Sickel Cell thats when shit changed:
- https://pubmed.ncbi.nlm.nih.gov/21707349/
See here is another sickle cell joke...
And note the audience reaction
www.thewrap.com
“This dude is so obsessed with Black people, I’m gonna start calling him sickle cell,” Hughley joked (for those unaware, according to the CDC, Black people are at a significantly higher risk of having sickle cell disease).
And note the audience reaction
The Daily Show: DL Hughley on Why Tucker Carlson Is Obsessed With Black People
The Daily Show guest host DL Hughley took aim at Tucker Carlson's obsession with Black people and incendiary comments about Tyre Nichols.
www.thewrap.com
“This dude is so obsessed with Black people, I’m gonna start calling him sickle cell,” Hughley joked (for those unaware, according to the CDC, Black people are at a significantly higher risk of having sickle cell disease).
Last edited:
Human nature man hate to say it........ people will joke about things until it affects them directly/personally
Post of the month
‘Velma’ Angers Twitter (Again) With Unfortunate Sickle Cell Joke
“I have a disease where I can’t recognize people who aren’t hot,” a character jokes in the animated series.
decider.com
World Sickle Cell Day
This World Sickle Cell Day, let’s come together to raise awareness about sickle cell disease.
nationaltoday.com