Don't get caught up in the price too much.... my wife works in the space she told me usually this new fda treatments tend to be on the higher side it will decrease over the course of time. The cost of caring for sickle cell crisis in a ER is like 500k/per year per person or something like that.I heard it's like 2.2 million smh
crackers will never care
My little boy was born at Johns Hopkins to a mother who could barely feed herself and the other kid she already had. My son was the father. He had a crisis on day 1 and we all realized that he needed special attention and resources. We politely requested that, rather than give her child support for 18, that she let us, with a big house and health insurance. take care of him. She agreed and practically walked out of his life. He had his spleen removed when he was 3, and practically did away with SC crises. He still had them, but much less frequently. They started monthly infusions at age 12. Finally, at age 18, just after he finished HS, he had a stem cell transplant, made possible because his father was a match.
He is SC free at age 25, recently married and completing college, since he had to put everything on hold while he prepared for the transplant.
wow...that's huge and a blessing bro. good to have a real life experience on the subject
My little boy was born at Johns Hopkins to a mother who could barely feed herself and the other kid she already had. My son was the father. He had a crisis on day 1 and we all realized that he needed special attention and resources. We politely requested that, rather than give her child support for 18, that she let us, with a big house and health insurance. take care of him. She agreed and practically walked out of his life. He had his spleen removed when he was 3, and practically did away with SC crises. He still had them, but much less frequently. They started monthly infusions at age 12. Finally, at age 18, just after he finished HS, he had a stem cell transplant, made possible because his father was a match.
He is SC free at age 25, recently married and completing college, since he had to put everything on hold while he prepared for the transplant.
I am happy to hear that the stem cell transplant work for the him. I am always looking for real life/personal experiences with people that have went through the process
wow...that's huge and a blessing bro. good to have a real life experience on the subject