Sickle Cell Awareness Thread: Sickle Cell Awareness Month 2023! UPDATE: FDA APPROVES GENE THERAPY
- Thread starter playahaitian
- Start date
Artist, 'sickle cell warrior' Hertz Nazaire dies at 48
Hertz Nazaire gained international attention for vivid paintings dealing with sickle cell disease. Nazaire died last week.
www.ctpublic.org
@playahaitian look into this with your doc.
I don't know anything about it yet, but heard about it this morn.
www.drugs.com
I don't know anything about it yet, but heard about it this morn.
Oxbryta: Package Insert - Drugs.com
Oxbryta package insert / prescribing information for healthcare professionals. Includes: indications, dosage, adverse reactions and pharmacology.
www.drugs.com
@playahaitian look into this with your doc.
I don't know anything about it yet, but heard about it this morn.
Oxbryta: Package Insert - Drugs.com
Oxbryta package insert / prescribing information for healthcare professionals. Includes: indications, dosage, adverse reactions and pharmacology.
thank you brother...
I am actually going to be involved a community meeting with them in a few weeks
I appreciate you, I owe you a conversation
All the best to the family have a safe and prosperous holidays !
A Conversation with Dawnn Lewis
The beautiful actress and GRAMMY award winning singer, Dawnn Lewis is just as busy as ever these days.
www.huffpost.com
Dawnn Lewis & LA Urban League Combine for 'A Concert for a Cause' | EURweb
: Dawnn Lewis & LA Urban League Combine for 'A Concert for a Cause' . Click to read more about on EURweb .
The KIS Foundation — Raising Awareness of Sickle Cell Disease
The KIS Foundation, Inc. is dedicated to improving the social health and quality of life for children and families living with Sickle Cell Disease.
thekisfoundation.org
Increased risk of leukemia among sickle cell disease patients in California - PubMed
Increased risk of leukemia among sickle cell disease patients in California
pubmed.ncbi.nlm.nih.gov
Center of Excellence in Sickle Cell Disease
Boston University is a leading private research institution with two primary campuses in the heart of Boston and programs around the world.
www.bu.edu
FDA approves first test of CRISPR to correct genetic defect causing sickle cell disease
UC scientists and physicians hope to permanently cure patients of sickle cell disease by using CRISPR-Cas9 to replace a defective gene with the normal version
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FDA approves first test of CRISPR to correct genetic defect causing sickle cell disease
UC scientists and physicians hope to permanently cure patients of sickle cell disease by using CRISPR-Cas9 to replace a defective gene with the normal versionnews.berkeley.edu
While I am excited about the CRISPR technology the one thing that gives me pause is that they are first tackling sickle cell (i.e. make black people the guinea pig)
I can understand your hesitancy trust.
But at the same time these white folks suddenly realized just how much money is available to them from this disease.
So it's not even about anything but money.
As long as in the long run there is a viable cure?
I'm ready.
Completely agree on getting a viable cure. Here is another interesting article of note on following up on the early patients of the process:
Sickle cell: ‘The revolutionary gene-editing treatment that gave me new life’
Sickle Cell Disease (SCD) Silent Damage
Learn how anemia, hemolysis, and vaso‐occlusion drive SCD damage
www.scdsilentdamage.com
Sickle Cell Disease (SCD) Resources
Learn more SCD statistics, understand SCD genotypes, and find resources for your practice here.
www.scdsilentdamage.com
Change for Sickle Cell Disease
Welcome to Change for SCD, a healthcare professional resource discussing the current challenges, options, and need to change the approach to treating sickle cell.
@Mixd
What you think of this food?
What you think of this food?
BGOL Health: Natto - Japan's most unique traditional health food
Nattō is a traditional Japanese food made from soybeans fermented with Bacillus subtilis. Some eat it as a breakfast food. Nattō may be an acquired taste because of its powerful smell, strong flavor, and slimy texture Natto is a popular dish in Japan consisting of fermented soybeans...
www.bgol.us
Never seen it before.
Why supposed to be good for you? Fermented Soybeans?
Russell Simmons Presents Brave New Voices | Apple TV
Six teams of teenage poets compete in verbal battle in an effort to make it to Washington, D.C. for the National Slam Poetry championship.
tv.apple.com
Crispr's Origin Story Comes to Life in a New Documentary
Human Nature takes a closer look at the scientists who founded the world-altering field of gene editing—and revels in the science.
This is what Karen Hunter has built over the past year... knarrative & knubia
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Knubia, brand-new social community, powered by Knarrative. This space features a more robust community engagement system which allows you to interact more freely and directly with fellow Knarrative users as well as the Knarrative team itself.
Knarrative is committed to helping Black people, across the Diaspora, know our history, create our own stories, and understand ourselves through explorations of the past so that we can grow brighter futures.
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Billy Garrett Jr. becomes first player in NBA/TBT history to play with sickle cell disease - TBT and TST
By: Josh Brown Billy Garrett Jr. is the first player in NBA & TBT history with sickle cell disease…and that’s just the beginning of his story. After being diagnosed with sickle cell at birth — a condition that inhibits the ability of hemoglobin in red blood cells to carry oxygen — Garrett was...
thetournament.com
Billy Garrett Jr., the only NBA player with sickle cell disease, is an inspiration
Garrett: ‘It’s like a double whammy. Making it to the league and doing it with the disease. I hope it’s an inspiration to a lot of the kids with sickle cell.’
chicago.suntimes.com
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World Sickle Cell Day 2022 | Linktree
Join the Brooklyn Public Library in raising awareness for Sickle Cell
World Sickle Cell Day 2022 Book Adventures : A sick day for Amos McGee Philip Christian Stead
World Sickle Cell Day 2022 Join us on the Jamaica Bay Library's Facebook page for a read aloud of Calling Dr. Zaza by Mylo Freeman https://www.facebook.com/jamaicabaybpl/ Summary : Zookeeper Amos McGee always makes time to visit his friends who live at the zoo until the day he stays home because...
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World Sickle Cell Day 2022 Virtual Kids Create : Paper People Chain | Brooklyn Public Library
Learn how to make Paper People Chain by following instructions on our facebook page. Visit: https://www.facebook.com/jamaicabaybpl/ Website : https://www.sicklecelldisease.org/ Booklist : https://www.bklynlibrary.org/search?booklist=574788
World Sickle Cell Day 2022 Book Adventures : My mommy medicine Edwidge Danticat | Brooklyn Public Library
World Sickle Cell Day 2022 Join us on the Jamaica Bay Library's Facebook page for a read aloud of My mommy medicine Edwidge Danticat https://www.facebook.com/jamaicabaybpl/ Summary : "When a child wakes up feeling sick, she is treated to a good dose of Mommy Medicine. Her remedy includes a...
World Sickle Cell Day 2022 Book Adventures : I feel... sick D J Corchin | Brooklyn Public Library
World Sickle Cell Day 2022 Join us on the Jamaica Bay Library's Facebook page for a read aloud of Calling Dr. Zaza by Mylo Freeman https://www.facebook.com/jamaicabaybpl/ Summary :
World Sickle Cell Day 2022 Virtual Kids Create : Get well soon card | Brooklyn Public Library
Learn how to make a get well soon card by following instructions on our facebook page. Visit: https://www.facebook.com/jamaicabaybpl/ Website : https://www.sicklecelldisease.org/ Booklist : https://www.bklynlibrary.org/search?booklist=574788
I just had a crisis a couple weeks back, painful back pain and hospital stay
Juiced me up with Morphine so I can sleep, was screaming and hollering all night in pain.
Doc said to lighten up a bit, drop 20 pounds and exercise a bit more. Gotta lay off the fast food
I heard some states have free healthcare for sickle cell but Florida isn't one of them, gotta get these bills paid.
If y'all got any info pass along, I'm looking for some assistance and possibly a cure one day.
Juiced me up with Morphine so I can sleep, was screaming and hollering all night in pain.
Doc said to lighten up a bit, drop 20 pounds and exercise a bit more. Gotta lay off the fast food
I heard some states have free healthcare for sickle cell but Florida isn't one of them, gotta get these bills paid.
If y'all got any info pass along, I'm looking for some assistance and possibly a cure one day.