Sickle Cell Awareness Thread: Sickle Cell Awareness Month 2023! UPDATE: FDA APPROVES GENE THERAPY
- Thread starter playahaitian
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Don't get caught up in the price too much.... my wife works in the space she told me usually this new fda treatments tend to be on the higher side it will decrease over the course of time. The cost of caring for sickle cell crisis in a ER is like 500k/per year per person or something like that.
Anyone buying crispr stock or other gene editing
stocks?
stocks?
‘What’s the worst that could happen?’: Love in the sickle cell capital of the world
The long read: The prevalence of sickle cell disease is changing how Nigerians date, marry and plan their lives. And as genetic testing becomes more common, prospective parents across the world will face similar questions
Could the ‘Netflix Model’ Work for Gene Therapy?
A new class of treatments for genetic diseases is promising but expensive.
www.bloomberg.com
I can understand the backlash and not wanting to be a punchline......
But I think the part SNL didn't say was
"Some ppl are not interested in that experimental shit."
As shown by reaction to the covid vaccines.....
And as potentially dangerous as the Vax may have been, there are a lot of unknown dangers with editing your DNA.....
You edit a strain for cancer and mfkrs may have weekend retinas and go blind.....
There's just so many genes/ features tied together and we have no idea how manipulating one can affect others
Uché Blackstock, MD on LinkedIn: A Harrowing Misdiagnosis And A Doctor’s Quest For Health Equity | 27 comments
Proud to share this excerpt from my New York Times best-selling book LEGACY: A Black Physician Reckons with Racism in Medicine ⚕️ in NPR’s Science… | 27 comments on LinkedIn
A Black Physician Takes on Racism in Medicine
Physician Uché Blackstock talks about her experience of the huge health disparities faced by Black Americans in her new book Legacy
The Reeducation of Uché Blackstock, the Doctor Disrupting “Medical Apartheid” - Early Learning Nation
Uché Blackstock didn’t plan to become a radical physician, but the pain and death she witnessed at Kings County Hospital in Brooklyn radicalized her.
earlylearningnation.com
Sickle cell disease is 11 times more deadly than previously recorded | Institute for Health Metrics and Evaluation
Eight million people suffer from the hereditary disease which disproportionately impacts children, adolescents, and young adults.
www.healthdata.org
Homepage | Institute for Health Metrics and Evaluation
The Institute for Health Metrics and Evaluation (IHME) is an independent global health research center at the University of Washington.
www.healthdata.org
My little boy was born at Johns Hopkins to a mother who could barely feed herself and the other kid she already had. My son was the father. He had a crisis on day 1 and we all realized that he needed special attention and resources. We politely requested that, rather than give her child support for 18, that she let us, with a big house and health insurance. take care of him. She agreed and practically walked out of his life. He had his spleen removed when he was 3, and practically did away with SC crises. He still had them, but much less frequently. They started monthly infusions at age 12. Finally, at age 18, just after he finished HS, he had a stem cell transplant, made possible because his father was a match.
He is SC free at age 25, recently married and completing college, since he had to put everything on hold for 2 years while he prepared for the transplant.
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I am happy to hear that the stem cell transplant work for the him. I am always looking for real life/personal experiences with people that have went through the process
wow...that's huge and a blessing bro. good to have a real life experience on the subject
He was in a program that required quarterly check ups for five years. He was all clear after one year, and now hasn't seen a doctor for two years. Except he's planning to go to school to be a physician's assistant and has been doing 12 hour shifts at the training hospital
Sanjay Juneja, M.D. | Medical Oncology In Baton Rouge, LA - Mary Bird Perkins Cancer Center
Dr. Sanjay Juneja is a medical oncologist in Baton Rouge at Mary Bird Perkins Cancer Center, and a member of Louisiana Hematology Oncology Associates (LHOA).
marybird.org